Henry's Story: “Knowing our Roald Dahl Specialist Nurse, Clare is there and is our person of contact is like having someone as a security blanket”

Henry (4) has the incredibly rare, inherited blood condition, Diamond-Blackfan Anaemia. Since diagnosis, Henry’s parents have been on an emotional rollercoaster having to take him for blood transfusions every three weeks and then a bone marrow transplant. Henry’s Roald Dahl Specialist Nurse, Clare, has been by the family’s side throughout. We caught up with Henry’s mum, Zoe to find out more about the impact of having a seriously ill child and why having the support of a Roald Dahl Specialist Nurse is so important: