Our Impact

We have a strategy to ensure we have maximum impact. We also highlight, and showcase the impact and effectiveness of specialist nursing for seriously ill children.

Roald Dahl Nurse , Dr and child in hospital

We partner with a number of organisations to demonstrate the value of Roald Dahl Specialist Nurses.

The impact of Roald Dahl Specialist Nurses

We have commissioned Sheffield Hallam University (SHU) to produce an independent report on the impact of Roald Dahl Nurses on both the children and families they care for, and the NHS teams that they work with. Each of the 22 Roald Dahl Specialist Nurses appointed since 2016 and their key stakeholders have been invited to participate in the evaluation. Although the final evaluation report and summary is due to be completed by December 2020, initial feedback and findings from SHU include:

Roald Dahl's Marvellous Children's Charity is highly regarded as a partner by the NHS. It is seen as reliable, caring, committed and with an emphasis upon quality in terms of what it does and how it does it by the NHS.

Roald Dahl Specialist Nurses and their managers are passionate about being, or employing, a Roald Dahl Nurse.

There is a sense in which the commitment to the roles demonstrated by Roald Dahl Marvellous Children's Charity was significant as a catalyst for the NHS Trusts partner organisations. In a cash-strapped NHS, the financial commitment to funding the first two years of a post has enabled business cases to be ‘signed off’ which otherwise might have been frozen or rejected outright.

Our impact in numbers

1,600

Families helped through grants over the last 10 years.

over

21,000*

Children and young people supported at any one time.
*estimate

£37,000

In COVID-19 grants distributed to help families with medical needs at home.

82 **

Roald Dahl Specialist Nurses.
**as of 5th July 2021, includes 1 play specialist and 2 occupational therapists

Partnership with

41

NHS Trusts and Health Boards.

over

30

Nurse led innovation projects created.

 
What the charity has done for us is priceless. We need our Roald Dahl Nurse, Anna. She's been at our side the whole way through and we haven't looked back.
 
- Parent of a seriously ill child

Demonstrating the financial value of Roald Dahl Specialist Nurses

In partnership with the Royal College of Nursing, and applying the principles of economic assessment, we have developed four case studies that illustrate the financial value of our Roald Dahl Nurses.

Kirsten Johnson - Roald Dahl Epilepsy Nurse Specialist

Kirsten Johnson is a Roald Dahl Sapphire Epilepsy Nurse Specialist at Sherwood Forest Hospitals NHS Trust.

Through rigorous analysis of her records, Kirsten has demonstrated that just one aspect of her service - that is her telephone and advice line service - has saved the NHS £84,778 in just one year. This aspect of her service has also contributed to her NHS trust meeting its 18 week waiting time target.

For more, read her full case study here: A one page summary of the findings.

Other case studies that demonstrate the value of specialist nursing

Hannah Chaffe - Roald Dahl Sapphire Epilepsy Nurse Specialist, Ashford and St Peter's NHS 

Hannah's full case study.

Edith Aimiuwu - Roald Dahl Paediatric Haemoglobinopathy Clinical Nurse Specialist, Whittington, London

Edith's case study is here.

Natalie Baines - Roald Dahl Sapphire Epilepsy Nurse Specialist, Royal Surrey County Hospital 

Read more about Natalie's study here.