Roald Dahl Specialist Nurses

Roald Dahl Specialist Nurse and child
Specialist Nurse

Roald Dahl Nurses are specialists at providing support, information and practical care for seriously ill children and young people, working in NHS Trusts and Health Boards across the UK. They are a vital lifeline to the whole family, often supporting them emotionally as well.

Roald Dahl Nurses work with children and young people affected by complex, lifelong illnesses that are under-funded and under-resourced including epilepsy, rare diseases, Sickle Cell Anaemia, and neuro-muscular conditions. Roald Dahl Nurses also support children as they transition into adulthood. Our incredible nurses are all highly trained, senior professionals who can ‘make things happen’ both in the hospital and the wider community setting such as with schools or GPs. Many will have completed specialist courses in a variety of specialist areas and will be leaders within their areas of expertise. They will also be giving advice to other healthcare professionals as the areas they deal with are often complex and cross over into many other clinical specialisms.

How To Get Support

You’ll need to be referred by your hospital consultant, GP, district nurse or hospital ward sister. Do find out if there are Roald Dahl Specialist Nurses available for the conditions your child has in your area. Roald Dahl Nurses work throughout the country, but if there isn’t a Roald Dahl Nurse in your local area, you can be referred to an alternative specialist service.

If you currently have a Roald Dahl Nurse and are looking for financial advice, then please do contact us to find out more about our Marvellous Family Support Service.

Roald Dahl Nurse Tina with a Child
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Types Of Roald Dahl Nurses

All Roald Dahl Nurses make an incredible difference to the children and families they support. You can find out more about the general impact they have or for examples of the different types of nurses please read on:

Roald Dahl Specialist Nurse
Roald Dahl Epilepsy Specialist Nurse

There are 40 Roald Dahl Epilepsy Specialist Nurses based in NHS Trusts and Health Boards around the UK. Epilepsy specialist nurses play a key role in supporting continuity of care between settings for children and young people with epilepsy. There is evidence that they improve clinically important outcomes such as knowledge, anxiety and depression in secondary and tertiary settings. An epilepsy specialist nurse has additional qualifications in neurology and care of patients with epilepsy.

Roald Dahl Nurse with children
Roald Dahl Haematology Specialist Nurse

Roald Dahl Haematology Specialist Nurses focus on Sickle Cell Anaemia and Thalassemia, although some deal with other blood conditions. As well as taking the key role of co-ordination of care for the child and their family, the haematology specialist nurse will be an expert in the conditions they support, and they will administer treatments such as regular blood transfusions to their patients. As leaders in their fields, these nurses will work closely with consultants and other specialists.

Roald Dahl Transition Nurse Giselle
Roald Dahl Transition Specialist Nurse

Transitional care is where a child will move from children's (paediatric) to adult services. These are two quite different services and it can lead to a time of anxiety and worry for young people. Transition starts in early teens and can continue to be supported until the patient is 25. Although transitioning young people into adult care will be part of all Roald Dahl Nurses roles, a transition specialist nurse will work solely on this area creating pathways for the young person to follow as they move through the system and supporting them both from a medical and emotional standpoint.

Roald Dahl Nurse Jennifer and child
Roald Dahl Neuromuscular Specialist Nurse

Neuromuscular conditions impair the functioning of the muscles, as part of the voluntary muscle or nervous system. Neuromuscular specialist nurses will work across a range of conditions, where they are expert in managing medications for their children providing a responsive and tailored service that reduces hospital admissions. Children, young people and their families need a lot of support throughout their life from diagnosis, through transition and beyond. Our neuromuscular specialist nurses are there to ensure they can lead a more marvellous life through the care, emotional support and care coordination they give.

Roald Dahl Nurse Elizabeth
Roald Dahl Rare Diseases Specialist Nurse

We have strong links with some of the UK's leading rare disease centre's - at Birmingham Women's and Children's Hospital and at Great Ormond Street Hospital. Our rare disease specialist nurses, and syndromes without a name nurse work with children and young people who have rare or undiagnosed conditions. Whilst their work is similar to that of the other Roald Dahl Nurses, they specialise in the genetic side of diseases and have to support the families emotionally when they don't have a diagnoses or if their condition is incredibly complicated.

Roald Dahl Nurses
Roald Dahl Nurses with other specialisms

Roald Dahl Nurses work across a range of other specialisms where children are living with life long, under funded and under resourced conditions. These include brain injury patients, brain surgery, non-malignant bone marrow transplants and gastroenterology.

All of our nurses are part of a network, where they are able to build peer support, develop their skills and improve their qualities as a leader or a manager. Roald Dahl Nurses are an incredible source of information and knowledge and this spreads around our network and beyond.

Roald Dahl Nurses are located all around the country, visit our interactive map to find out more

Roald Dahl Nurse Bethan
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How Roald Dahl Nurses Are Established

All Roald Dahl Nurses are employed by the NHS and their posts are 'pump primed' by us for the first two years. That means that we raise money for the first two years and after that time, the long-term funding is taken up by the NHS, but the nurse continues to be called a Roald Dahl Nurse. We support the nurses in various ways, for example by providing nurse development opportunities, providing a peer support community for them or working on nurse-led innovation projects.

You can help us establish more Roald Dahl Nurses by donating today.

How to become a Roald Dahl Specialist Nurse

Roald Dahl Specialist Nurses are registered nurses who have been educated to degree level and have completed postgraduate learning or are working towards postgraduate qualifications. If you would like to become a Roald Dahl Nurse, there may be opportunities that are coming up at NHS Trusts and Health Boards around the UK. You can contact our programmes team to find out more.

Alternatively, you can search for 'Roald Dahl Nurse' in NHS jobs and there may be one of interest to you. Visit the link below.

Roald Dahl Nurse Caroline
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