Lily's Story: "Our Roald Dahl Nurse has been amazing; she is a walking medical guru and really supports the whole family."

Lily (16), a keen aerial trapeze artist, was diagnosed with severe epilepsy in 2018. We caught up with her mum, Mary to find out what it’s like to be thrown into the “petrifying, unknown” world of having a child with a serious lifelong illness and how Lily’s Roald Dahl Specialist Nurse, Becs has helped with expert support, sympathy and hand-holding realism: