Carter's Story

Imagine having to be careful when holding your child’s hand because his joints dislocate on a daily basis or having to take care when you cuddle him because he bruises so easily. Imagine having to co-ordinate appointments for the ten consultant teams he is under. This is life for 10-year-old Carter and his mum, Laura. Thankfully, they have the support of Roald Dahl Specialist Nurse, Tina who provides both practical and emotional care and helps Laura feel less isolated and alone.