"Everything is a fight because Sadie doesn't have a named condition."

Sadie (age 4) is a SWAN (Syndromes Without A Name) child which means she doesn’t have a diagnosis. Whilst to many people, Sadie looks like a healthy, happy four-year-old, she has a range of extremely complex health conditions. We caught up with her mum, Lucy to find out more about the impact of having a child without a diagnosis and an invisible, lifelong, incurable illness: