Online Family Workshops

Roald Dahl's Marvellous Children's Charity is proud to join the Digital Services Consortium (DSC), an alliance of twelve charities, which will help over 20,000 families to get online, get connected, and access life-changing support online.

The Marvellous Family Workshops are available for families supported by a Roald Dahl Nurse. Available for children, young people, and their families, these sessions will give young people and their siblings the chance to meet others who truly understand, make new friends, and build a strong, supportive community.

If you have any questions about our workshops or would like to book on, please email us at familyworkshops@roalddahlcharity.org

Children and Young People Groups

An online space for children and young people.

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Online Sensory Groups

For any child/young person under 18 who would benefit from parent led sensory exploration.

Sensory Storytime
Follow along with a story, using items from around the house to engage all five senses.
Last Friday of the month: 12:00 - 12:40

Storytime with massage
Follow along with stories and nursery rhymes using touch and massage

Once a month: Monday 18:00 - 18:30
11 August, 8 September, 6 October, 17 November, 15 December

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Young People Living with Sickle Cell and other blood disorders

An online group for young people living with sickle cell and other blood disorders. A space to talk, meet new people, and make new friends.

Parents & Under 12s
Every second Tuesday 16:30 - 17:30
Age 13-15
Mondays 16:30-17:30
Age 16-18
Mondays 19:00-20:00

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Young People Living with Epilepsy

An online group for young people living with Epilepsy. A space to talk, meet new people, and make new friends.

Parents & Under 12s
Mondays (Bi-weekly from 21st July)
16:30 - 17:30
Age 13-15
Fridays 17:00-18:00
Age 16-18
Fridays 18:00-19:00

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Once a Month Teen Social

An online group for all our Teen groups to come together and engage in bigger events, such as workshops, speakers and larger scale activities

Last Friday of the month
19:00-20:00

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Sibling Group 15+

An online group for the siblings of children under a Roald Dahl Nurse. A place to talk and meet peers.

Thursdays:
19:00 - 20:00

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Parent and Siblings Group (Under 12)

An online group for the parents and siblings of children under our Roald Dahl Nurses. A time to bond one on one through games, arts and crafts, fun challenges and more...

Saturday (once a month)
14:00 - 15:00
Wednesday (once a month)
16:30 - 17:30

Register Your Interest
Roald Dahl Nurse

Parent and Carer Online Social Groups

These condition-specific social groups are a chance to meet and chat with other parents and carers who understand what life is like living with and caring for a children with a serious illness. Our Roald Dahl Nurses often come along too! Hear updates from the charity and get tips and advice from other families.

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Parents Group: Neuromuscular Conditions

An online group for parents of young people living with neuromuscular conditions.

Wednesday once a month
11:00 - 12:00
19:00 - 20:00

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Parents Group: Neurological Conditions

An online group for parents of young people living with neurological conditions.

Wednesday once a month
11:00 - 12:00
19:00 - 20:00

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Parents Group: Children Living with Complex Medical Conditions

An online group for parents of young people living with complex medical conditions.

Wednesday once a month
11:00 - 12:00
19:00 - 20:00

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Parents Group: Sickle Cell

An online group for parents of young people living with sickle cell.

Wednesday bi-weekly
11:00 - 12:00
19:00 - 20:00

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Parents Group: Epilepsy

An online group for parents of young people living with epilepsy.

Tuesday bi-weekly
11:00 - 12:00
19:00 - 20:00

Register Your Interest
Roald Dahl Nurse and child

Parent and Carer Workshops

These sessions will equip families with the tools and knowledge to make everyday life a little easier’

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SEND Law and Education and Health Care Plans

A 3-part workshop, which helps parents and carers navigate what can sometimes be a stressful application process when looking for additional support for children.

  • Session 1 covers SEND law and the roles and responsibilities of everyone involved in a child’s education.
  • Session 2 and 3 cover the process of getting an Education and Health Care Plan and what should be included.

05 November

12 November

19 November
19:00 – 20.30

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First Aid Awareness

Guidance to increase your confidence in helping children with the following issues:

  • Recovery positions for babies and children
  • How to give CPR for babies and children
  • How to deal with choking
  • Head injuries
  • Febrile seizures
  • Bleeding
  • Burns
  • Fractures & Dislocations
  • Anaphylaxis (severe allergic reactions)
  • How to spot signs of Meningitis
  • How to spot signs of Meningitis
  • Poisoning
  • Shock

08 December
18:30-20:30

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Managing nutrition in children with Sickle Cell Disorder

This workshop for parents and carers will cover these areas:

  • How nutrition links to sickle cell disorder
  • Common nutritional problems, risks and challenges in children with sickle cell
  • Importance of building good nutritional status in children with sickle cell
  • An overview of the sickle cell nutrition Eatwell Guide
  • What is good nutritional status?
  • Preventing malnutrition and growth delays
  • Practical tips and suggestions for managing some of the common nutritional problems children with sickle cell disorder face
  • Q&A session

29 October
19:00-20:30

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